About Cystic Fibrosis & CFACT

Cystic Fibrosis Facts

  • The average life expectancy for Australians born today with Cystic Fibrosis is approximately 38 years.
  • It is the most common life shortening genetic condition in Australia.
  • On average, one Australian child is born with cystic fibrosis every four days.
  • Children with CF tend to have recurrent chest infections and breathing problems and the condition worsens with age.
  • Over time, lungs become permanently damaged.
  • People with CF should not spend time together due to the high risk of cross infection.
  • As the pancreas doesn’t produce the usual enzymes for digestion, people with CF can become malnourished.
  • Approximately 40% of people with CF will develop diabetes.
  • And up to 30% will develop liver disease.
  • Most people with CF will take 60 or more tablets a day including enzyme replacements, high dose multi-vitamins and salt.
  • Managing cystic fibrosis is lifelong, ongoing and relentless including tough physiotherapy regimes and hospital admissions several times a year
  • Adults with CF are increasingly impacted by the costs of maintaining their fitness and medication regimes
  • There are significant mental health implications for all involved from the stress of living with a life limiting condition.

There is no cure.

At Cystic Fibrosis (CF) ACT we have a vision of people living lives unaffected by CF. A mission to improve the quality of life for people with CF and their carers, and a goal to provide support services, education and research that will help people with CF.

Our support services focus on creating independence and reducing the impacts of living with cystic fibrosis for our members living in the ACT and surrounding region. Members of CFACT living with cystic fibrosis (or parents of children with CF) can access financial assistance and other support for the care and treatment of cystic fibrosis.

CFACT receives no government funding and has limited access to grants. We rely on fundraising and donations to continue to provide our much needed services.