Interview with Emma Osborn, Gungahlin. Describe your typical day living with cystic fibrosis. Long, but not long enough! In addition to having cystic fibrosis, I'm a wife, a mother, a daughter, a friend and an employee. My husband and I both work and my son, Elias (who just turned 3) is in daycare four days … Continue reading I am a Mum, who happens to have cystic fibrosis
Category: cysticfibrosis
We launch in style (pants required)
Thank you to everyone who joined us at our 2017 launch Red Tie Soiree. We had a jam packed room (Yacht), thanks to our new partners the Canberra Southern Cross Yacht Club who hosted our very first launch. On the night both seasoned Shufflers and those eager to join us enjoyed great food and wine, while … Continue reading We launch in style (pants required)
A mother’s experience with cystic fibrosis
YOU’VE MET A GUY. You’re at that time in your life when you are sick of the dating scene, you’ve got a great job, a wardrobe full of wonderful clothes, amazing friends, but that special person is missing from your life. Your ‘work husband’ decides he knows the perfect guy for you – his brother-in-law! … Continue reading A mother’s experience with cystic fibrosis
Canberrans urged to don their speedos on 2CC
It's always a pleasure to speak with Tim Shaw from 2CC! Even more so when he is brave enough to don the speedos for local families with cystic fibrosis! Look out Canberra - Head Santa's All Stars are on the move. Who would you like to see in the line up? Listen to the full … Continue reading Canberrans urged to don their speedos on 2CC
“I needed to test myself”
Member Story by Andrew Prowse In late August, at the end of three months of aggressive and debilitating Hospital in the Home treatment for a highly damaging bacterial lung infection, I had a moment of clarity. This was a state of mind that had evaded me during the haze of treatment and for some time … Continue reading “I needed to test myself”
Where it all began
The History of the Santa Shuffle by Head Santa
